For days she couldn’t stop getting sick. At first she doubted the probable cause.

Many people, he added, are reluctant to tell doctors they use the drug or that they are dependent on it. CHS remains “way underrecognized” by doctors, he said, and is a diagnosis of exclusion typically made after other conditions have been ruled out.

“CHS is a very frustrating and alienating condition to have,” Danovitch added. “It often takes people a long time to be diagnosed and there’s a lot of suffering along the way.”

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